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    Resources for Parents with Disabled Children

    :salams

    Feel free to contribute!

    Subhan'Allah, my recent interactions with parents with children with disabilities has really opened my eyes to how difficult life really is, esp trying to juggle the multiple roles.

    I have access to lots of information, so Im just making this thread for posters on Ummah to benefit, as I know quite a few of you have children with sort of special needs.

    I will be updating this with more stuff, but if you need any more information or need help on anything else then just send me a PM. I cant make any promises, but I will Insha'Allah try my best.

    I still havent managed to find anything Islamically respite care appropriate though, which is a shame. Although I know there is a resort in Egypt that caters for disabled Muslim children and their children.......(look up!)

    Please contribute your own findings as well Insha'allah.

    :love:


    Tips for Parent Carers

    http://www.netbuddy.org.uk/
    Last edited by Jenicca; 06-12-11, 03:19 PM.
    وَالْعَصْرِ

    إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

    إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

    "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

    "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

    Khanqah Habibiyah

    #2
    Re: Resources for Parents with Disbaled Children

    Improving Childhood Continence

    http://www.eric.org.uk/
    وَالْعَصْرِ

    إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

    إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

    "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

    "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

    Khanqah Habibiyah

    Comment


      #3
      Re: Resources for Parents with Disbaled Children

      Guidance from D of H regarding Autism
      Attached Files
      وَالْعَصْرِ

      إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

      إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

      "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

      "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

      Khanqah Habibiyah

      Comment


        #4
        Re: Resources for Parents with Disbaled Children

        Contact A Family - for families with disabled children

        http://www.cafamily.org.uk/
        وَالْعَصْرِ

        إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

        إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

        "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

        "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

        Khanqah Habibiyah

        Comment


          #5
          Re: Resources for Parents with Disbaled Children

          HemiHelp - for children and young people with hemiplegia and their families.

          http://www.hemihelp.org.uk/
          وَالْعَصْرِ

          إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

          إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

          "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

          "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

          Khanqah Habibiyah

          Comment


            #6
            Re: Resources for Parents with Disbaled Children

            Child Safety - RoSPA

            http://www.rospa.com/childsafety/default.aspx
            وَالْعَصْرِ

            إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

            إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

            "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

            "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

            Khanqah Habibiyah

            Comment


              #7
              Re: Resources for Parents with Disbaled Children

              Nadex National - for Independent and aided living in the home ( this is really worth going to esp for specialist equiptment )

              http://www.naidex.co.uk/NaidexBir11/...t.aspx?refer=1
              وَالْعَصْرِ

              إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

              إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

              "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

              "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

              Khanqah Habibiyah

              Comment


                #8
                Re: Resources for Parents with Disbaled Children

                Explaining Eating Disorder

                http://www.youtube.com/watch?v=hJ_7SU0nzb0
                وَالْعَصْرِ

                إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                Khanqah Habibiyah

                Comment


                  #9
                  Re: Resources for Parents with Disbaled Children

                  Charitable Funding for Disbaled Children and their Families

                  http://www.disability-grants.org/
                  وَالْعَصْرِ

                  إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                  إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                  "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                  "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                  Khanqah Habibiyah

                  Comment


                    #10
                    Re: Resources for Parents with Disbaled Children

                    National Bureau for Students with Disabilities

                    http://www.skill.org.uk/index.aspx
                    وَالْعَصْرِ

                    إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                    إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                    "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                    "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                    Khanqah Habibiyah

                    Comment


                      #11
                      Re: Resources for Parents with Disbaled Children

                      The Aidis Trust - helping people with disabilities take advantage of modern technology. (Excellent Stuff)

                      http://www.aidis.org/
                      وَالْعَصْرِ

                      إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                      إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                      "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                      "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                      Khanqah Habibiyah

                      Comment


                        #12
                        Re: Resources for Parents with Disbaled Children

                        Self Directed Support and Personalisation

                        http://www.in-control.org.uk/support...rs-carers.aspx
                        وَالْعَصْرِ

                        إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                        إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                        "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                        "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                        Khanqah Habibiyah

                        Comment


                          #13
                          Re: Resources for Parents with Disbaled Children

                          The National Autistic Society ( including Aspergers Syndrome )

                          http://www.autism.org.uk/about-autism.aspx

                          Self Advocacy for adults suffering with Autism
                          Attached Files
                          وَالْعَصْرِ

                          إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                          إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                          "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                          "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                          Khanqah Habibiyah

                          Comment


                            #14
                            Re: Resources for Parents with Disbaled Children

                            Sensory Gardens for children with SEN

                            http://www.greenstonedesign.co.uk/Special_Needs.html
                            وَالْعَصْرِ

                            إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                            إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                            "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                            "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                            Khanqah Habibiyah

                            Comment


                              #15
                              Re: Resources for Parents with Disbaled Children

                              Independent Advice on Sepcial Educational Needs

                              http://www.sossen.org.uk/index.php
                              وَالْعَصْرِ

                              إِنَّ الْإِنسَانَ لَفِي خُسْرٍ

                              إِلَّا الَّذِينَ آمَنُوا وَعَمِلُوا الصَّالِحَاتِ وَتَوَاصَوْا بِالْحَقِّ وَتَوَاصَوْا بِالصَّبْرِ

                              "If Allah (swt) only sent this Surah to us, for the guidance of Mankind, this will be enough for us” - Imam Shaafi'ee r.a.

                              "Yeh dunya daar e faani hain, Tum apna dil mat lagaon, Ganimat samaj zinadagee ki bahar, aana na hoga, yahaa baar baar......"

                              Khanqah Habibiyah

                              Comment

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